I’ve got this deal going – in my head anyway – with the Three Fates. The Greeks called them Clotho, Lachesis and Atropos, and they spin out, measure, and in the end cut the thread of our lives. We are literally in their hands.

My deal is, I get to stay alive for some unspecified number of moments after the liver cancer and transplant. I get to be conscious, occasionally functional, and once in a while I even get to thrive. I also get to experience each and every sensation of a body running down its weave.

I’ve started and not finished a dozen posts on my health trials of the past year. One did refer to my struggle last summer just to learn that I’ve comedown two impossible–for-a-transplantee autoimmune diseases, but that’s it. I feel guilt for not having posted more. Continue Reading »

I finally got my H1N1 shot today at a big inject-a-thon held in San Francisco’s Bill Graham auditorium. Out front, mimicking event volunteers right down to their day-glo vests and friendly manners, the anti-vaccine, it’s-a-government-big-pharma conspiracy! folks were greeting everyone, handing out official-looking yellow papers. Reading this you found not info on what to do to get your shot, not the who-gets-what-and-why of vaccinating, but furtively hinted-at, semi-argued, conflicting pleas to avoid this vaccine – all vaccines! – at all costs. Especially if you want to “Save The Children”.

I stuffed the thing in my pocket and went in.

After rolling up my sleeve and getting the poke, I dug out the crumpled paper, went up to one of the anti-vaccine guys and tapped him on the shoulder. He turned around. I silently held out the crumpled paper and stood there. Staring at me quizzically, he finally extended his hand. I dropped the crumpled yellow sheet into his hand and walked away. He looked at me and at the paper, confused.

You can’t argue with these folks. But you don’t have to carry their garbage.

I saw the movie 2012 Sunday. No better way to get your mind off your own problems than to watch a big, messy Hollywood disaster flick where pretty much everybody’s fate is worse than yours.

2012 is exactly like every movie catastrophe you’ve ever seen: an estranged family fights for survival and the meaning of “family”; do-gooders shriek justice and compassion while everybody else panics and stabs each other in the back; heroic rescues give the audience – and the characters stuck in the mess – something to cheer. Bad guys get called-for comeuppance and sacred institutions (religious and secular) are reduced to richly deserved rubble.

Oh, and of course L.A. is destroyed. Again. Poor L.A.; no other city comes close to suffering as much cinematically as the womb of the entertainment industry. Kinda makes you wonder about the folks who run it…

There’s a lie in 2012’s marketing though, and I’m not talking about the bogus science. The movie isn’t really about the end of the world. It’s about the earth – more to the point us, humans – getting a chance at a makeover.

Sure, a good three-fourths of us are knocked off. “Civilization As We Know It” ends. Continents realign, the poles shift (to Wisconsin?), tsunamis scour half the land mass, and on. But by film’s end Things Stabilize and A New Dawn arrives – literally.

In other words, the earth – remaining humans included – gets an upgrade: a chance at a reboot to version 2.0.

And isn’t that exactly what all of us really want?

Our planet’s a mess. We’ve overpopulated it like rats on a sinking ship. We’re running out of resources, we’re only still eating because of hideous meat factories and genetic tricks made to our crops. To keep folks from thinking about all this education’s been turned into pop-culture quizzes and we’ve made a religion out of shopping.

But way down in our limbic brains we all know we’ve fucked up and hell’s to pay. Doesn’t matter who we blame – ourselves, our neighbors, those people over there, the rich, our gods or saints or sinners or politicians or just the roll of the dice – we know we all contributed and we’re all screwed.

Probably the biggest laugh in all the buzz around 2012 is the guilt some critics mention of rooting for John Cuzak et al while 6 billion other earthlings are being offed. Get real, critics! No one laments those people. Too bad about them, we tell ourselves, but when the apocalypse comes we know we’re with the elect. We will survive. This certainty isn’t just in our religions; it’s in our DNA.

What are movies like 2012 really about? What do we really want?

Another chance. And that’s what we want.

What we want is to toss away everything we’ve screwed up – in this case the whole damn world and everybody (else) in it – toss it all out like last year’s iPod and upgrade to the next version. Something newer, something trendier. More intelligent. Something like Earth, 2.0.

And we want more: we want something to force us to act, to do the right thing. Something like the realignment of the earth’s crust in 2012, say. Heaven knows we can’t do it on our own initiative: we can’t even agree whether Arctic ice is melting or if we should choose paper over plastic. Somebody – mommy? Are you there, mommy? – has to make us.

What a movie like 2012 offers is something to force us to act.

There’s another post-disaster movie out right now, Cormac McCarthy’s The Road. I haven’t seen it yet but I’ve read the book. Bleak, gray, filled with cannibals and hopelessness, strewn with wreckage, it offers no beginning to the catastrophe and no end. There are no shiny arks of salvation, no secret cooperation among nations. Just forage, disease and death.

The Road’s apocalypse is much more likely than 2012’s.

Which is why 2012 is packing the theatres and The Road will disappear in a week.

Who wants to fix problems when you can just upgrade and reboot?

I’ve been working on a few thoughts re: the healthcare “debate” we’re having in the U.S. from my perspective as a “professional consumer” of same. I didn’t plan to write this, though.

I have been seething at the treatment President Obama received addressing Congress about healthcare last Wednesday. The disrespect shown him – not just by Addison Graves Wilson of South Carolina, aka. “Joe the Heckler” but by the entire Republican caucus – was nauseating. Almost to a person, these “statesmen and women” of the opposition heckled the President waving sheafs of paper, petulantly pouted, booed and catcalled, and shot him endless hate-filled sneers worthy of a pissed-off 8 year old. One congressman even walked out for benefit of the cameras. It was disgusting.

Their venom has nothing to do with healthcare. It has everything to do with race.

Like the birth certificate flap that entertained us through the Summer, Spring’s anti-stimulus “tea parties” and pretty much every other pseudo-conflict stirred up since Obama’s election, the racial subtext of the health care “debate” is blatant.

Some people cannot abide having an intelligent, thoughtful black man in the Oval Office.

Finally someone with a pulpit has put the obvious out front and center. Maureen Dowd titled her column in yesterday’s New York Times Boy Oh, Boy, putting the missing word back into Wilson’s shout out, as in “You lie, boy!” Think about it for a nanosecond and you know she’s right. The old racist code word for black men was loud and clear.

Now, read carefully: no, not everyone who disagrees with Obama’s health care plans is a racist. Reasonable people have fiscal objections to government-run health care, philosophical objections, objections about his approach, and there are all sorts of worries about what change might do to our precarious status quo.

Are you hearing those people? No.

You’re hearing a U.S. senator boast how he’ll destroy Obama’s presidency by destroying his health care bill. You hear Master Wilson’s “liar liar” and how it’s netted him over 700 grand for re-election. You’re hearing Lindsey Graham – the so-called “reasonable” South Carolina senator – and a gaggle of other legislators calling the President a disaster.

And as always when politicians blow hard at the bottom of the barrel, they stir up muck.

Look at pictures from last week’s “tea parties”. Read the signs. You don’t need a psychic to see the real point of the protests. Obama is a “Fascist Muslim Communist!” (Will someone please tell me how anybody can be all those things at once?) Another shows Bin Laden passing the terrorist baton to Obama. Some of these fine patriots even put Obama’s picture in a pile of horse manure and took each other’s pictures standing in it. That’s a debate?

Death panels, granny-killers, black-on-white racism, a senator (Inhofe of Oklahoma this time) grandly proclaiming “I refuse to read the [healthcare] bill and I’m proud to vote against it!” Guns at town halls. Radio talk – serious – of killing the President. And anybody who has any kind of rational argument for, against, or middling on the actual issue of health care is a terrorist supporting a terrorist.

Don’t agree? Don’t think it’s racism, just strong opinions about a contentious issue? Take a look these photos from the first “tea parties” in April, set up to protest the stimulus package: “Obama’s plan: White slavery.” “The American taxpayers are the Jews for Obama’s ovens.” You look at the rest. I don’t have the stomach. The racial subtext has been front and center for the opposition from the moment Obama was elected.

The Obama presidency has brought out the best and the worst in America. So many of us have a quiet pride in our nation taking such a significant step last November, including many who disagree with him and didn’t vote for him. But at the other bottom of that barrel are those so incensed by his election they welcome him as termites welcome an exterminator. They cannot abide – abide! This! New! World!

Racism is the venom in the veins of America. It’s time to get it out – to call it out – before it kills us.

This “debate” disgusts me. And it has nothing to do with health care.

This happened yesterday. The only info you need to make sense of it are a) I was in the hospital for a few days about two weeks ago due to high fevers following an endoscopy (a look down the throat), and b) when they were looking, the docs saw something that concerned them,  declaring it Must Be Removed. I agreed. Now if only I could get it done…

Rather than polish it up and risk losing the, er, spontaneity, here’s the eMail I wrote to my friends.

Went to ENT (Ear/Nose/Throat) clinic today to get the thingy in my throat removed. The following happened:

1. Doc saw me, said situation is exactly what the docs in the hospital had said two weeks ago: growth on pharynx, probably papilloma, needs to come out. Said he’ll do an excisional (right word?) biopsy removing the whole thing (unless it extends into my brain or some other inconvenient spot). I said hooray for that! Continue Reading »

In my whine about my latest medical issues, I mention chronic pain. Chronic pain is different from regular pain in the same way a bad mood is different from a blackshade depression. A beloved friend who knows more than most about chronic pain sent me the following. She gave me permission to reproduce it here.

Chronic Pain: A Rant by RLL

It isn’t fair-but it doesn’t give a shit about that.  It just hurts.

Most people don’t know you’re in pain.  They think you’re just in a bad mood or are just being bitchy or difficult and hard to get along with. Some still consider it malingering — a sign of weakness.  Especially when pain starts canceling plans. Others take it personally – if you loved them you’d still want to do this or that like you used to or promised you would.  It’s just a lame excuse.

Chronic pain and its side effects don’t show really, at least not like acute pain.  If you don’t have a body part split open, are not dripping blood, have something wrapped up, slung up or taped down, it can’t really be all that bad and you’re just being a big baby.  You’re just making excuses to get out of something.

Continue Reading »

There has got to be a maximum number of diseases and disasters, conditions and catastrophes that one human body can handle before it just gives up and dives for the worms.

Surely two life-killing viruses, cancer, a liver transplant and all their attending “issues” is enough for one existence. You think?

Guess not.

This past month I’ve entered the brave new world of autoimmune disease. A couple of choices present themselves: one is called dermatomyositis, which is tthe operative definition at the moment, and it is NOT your friend. If you must read up, here’s a link, but don’t go there if you’re the least bit susceptible to internet-based too-much-medical-info-itis. My other option is graft versus host disease – GVHD in the jargon. This happens when a bit of the donor’s immune system gets into the recipient’s during transplant, and apparently requires (in non-marrow transplants, anyway) the recipient to have a weak immune system. Congrats, me! I win again!

The next doc who says to me, “Oh, but the odds are so small that such a thing will happen!” gets taken down. Continue Reading »

…that happily hands out bottles of nasty narcotics, including morphine, but denies coverage for celebrex, the only anti-inflammatory approved for transplant recipients, citing as the reason that said transplantee (me) is two years too young (!) to meet their formulary guidelines.

Go, HealthNet!

Go, America!

Recently I stepped in a pile of religious doo-doo on the ‘net. I extricated myself as fast as I could and made an attempt to tidy the mess, but it left the inevitable stain. What happened was this.

I have Yahoo and Google set to troll the web for the latest news on liver transplants and Hepatitis C. Along with the (desired) medical info I get articles about celebrities (Anita Roddick dies from HCV complications, alcoholic politicians and celebrities get moved to the top of the transplant list when they wear out an organ), Google also sends along links to blogs on these topics. Usually I just scan them Continue Reading »