Familiarity breeds… Boredom? Anxiety? Disdain? How about night terrors?

April 16th, 2011 by Ed

A shadowy figure broke into my house, into my room, into my dreams. In that way dreams have of telling us what’s going on I knew he was a burglar but he didn’t seem interested in burgling anything. All he did was cut me. Over and over he cut me: slices to my ears, stabs on my face, cuts to my arms and hands… painful small cuts, the kind that, added up to 10,000, cause death. Oh, those cuts. They hurt. I screamed.

The scream woke me up. I shuddered, shook my head at the horror of the nightmare and fell back into sleep – and  back into the dream.

The cutting man was still there. Not a gloater, he was nothing like Hollywood Evil. Just a man with a grim task to do. His knife looked like a scalpel, blood ran from my cuts. Why was he doing this? Why didn’t I fight back? If he was the thief the dream insisted he was, why didn’t he just take something and go?

I woke up so quickly at my second scream the sound was still in my room. I was sweating, my heart raced. The cuts burned but I couldn’t see the blood in the dark. My sleep was as deep rooted as the dream inside me and again I fell back into both.

The third time I screamed myself out from under his knife I forced myself out of bed, went to the the bathroom, walked the rooms in my apartment until I was sure I would not again fall prey to the grim shadowy man wielding his scalpel. It took a while to work and there was little sleep left when I finally went back to bed.

Three hours later my alarm went off. I got up, dressed, and headed to the medical center to repeat an ultrasound of my liver I’d had two weeks earlier.

–––

The first ultrasound was routine, a periodic check for tumors in case the cancer that was the cause of my liver transplant had resurfaced. The scenario was unlikely – I’d had many tests before and they showed nothing. Statistically the odds of recurrence were low. I sailed in and out that morning thinking about where to go for breakfast after the tech wiped the goo from my belly.

A few days later the report showed no sign of tumors and hooray for that. But a footnote noted something… what exactly? They weren’t sure. Something to do with the bile duct? My bilirubin (bile levels) had been elevated lately. Was the duct bent? Was it keeping bile from flowing out of the liver? The doc ordered a second ultrasound.

A bit of liver transplant plumbing: When surgeons install a new liver they hook up all the arteries and veins and other connectors on the new organ to the same pipes and fittings the old liver used. If they didn’t, well that would be like installing a new carburetor in an auto engine without hooking it up to the fuel line and manifold. Neither human nor car would go anywhere.

Most of these re-connects are of reasonable size and capable of manipulation, at least by a surgeon. But the bile duct, a small tube that drains the toxins the liver pulls out of blood and dumps them into your intestine for disposal, is a narrow thin-walled straw. Stitching the two halves together is by all accounts one of the harder parts of the surgery. Even well attached the duct remains a weak point. Think of a bent drinking straw straightened out: if a leak occurs it’ll be at the bent point.

A kinked bile duct means a) your liver fills up with bile; b) your body fills up with bile, c) you turn a ghoulish yellow-green, d) you feel really miserable and e) you wind up in surgery, stat.

And that is why I approached ultrasound test 2 with such fear. All I could see was myself back on the icy metal slab in the OR, waiting for then recovering from surgery. Seems I’ve run out of tolerance for that kind of thing.

Truth is, the idea of another body-slicing fills me with night terrors like that anonymous body cutter visiting in the night. I know too much, not just about surgery but myself. I know that if surgery is called for, I’ll probably acquiesce. In for a penny, in for a pound goes the cliché. I spent that pound a long time ago.

Everybody is afraid of surgery. The thought of having someone muck about in our really private parts, the ones even we don’t get to see, having our innards fiddled with by strangers wielding knifes and forceps while we are gassed into oblivion is not something we choose to think about until we have to.

For those who’ve never experienced surgery, it is the ultimate personal definition of the fear of  the unknown. It certainly was for me five years ago.

My experience having my skin cut and my intestines moved about, having parts removed and replaced, followed by the surreal, almost unspeakable strangeness of recovery that follows seems to have ushered me on to a new level of fear: terror of the familiar.

It isn’t pain that frightens. It isn’t another scar. Recovery is weird and wearying but manageable, even revelatory in a sick way. The hospital stay – well, I’ve developed an acute allergic reaction to the enforced confinement; only severe illness or heavy medication keeps me inside my head.

It is the fast rise and slow fade of anesthesia that is true test of endurance and recovery. Anesthesia plagues me more than any physical complication. Compared often – and poorly – to a deep sleep, researchers recently developed a more accurate analogy: to anesthetize is to place the body in an induced coma.

I have an even simpler analogy: Anesthesia is artificial death. I feel the disconnect from life each time I’m put under and the slow, confusing reconnect after the sedation is withdrawn. I have experienced death quite enough for one lifetime in other circumstances, right down to the apocryphal walk down the long hall to the light. Twice. Returning to this world after surgery leaves me with a profound loss and something unexpected found, neither of which I want.

–––

That slasher with his scalpel, the dozens of cuts he inflicted that wounded me but did not kill or show, my acquiescence in his brutality… this is one dream I don’t have to pay a psychiatrist to interpret.

 

I could never go through what you’re going through…”

January 10th, 2011 by Ed

I’ve heard this comment from friends and family and even strangers for five years now and it always makes me uncomfortable. Something’s off with it; somehow the sentiment just doesn’t ring true.

Thanks to Thomas Mann’s The Magic Mountain – I’m carrying out my vow to re-read this magnificent and complicated book – I’m learning why the remark causes such unease. I think I understand how the words do not say what they are meant to say.

It’s meant to be a kindness, even a salute. “I don’t know how you do it! I couldn’t,” someone will say to those of us fighting chronic illness or life-or-death health battles. Our treatments, our pain, the unending doctor visits and hospitalizations – they seem unendurable, impossible to someone looking at it all from the healthy “outside”. Read the rest of this entry »

Disasters that come from the mouth

January 9th, 2011 by Ed

The guy with the gun pulled the trigger in Tucson. But the constant vitriol of hate and demonization by political “leaders” and others helped set the stage.

In 1998, there was a flurry of anti-gay hate speech. Religious groups, sports figures and politicians fell over each other in their eagerness to get in front of a camera and denounce homosexuals, all because President Clinton had appointed James Hormel as ambassador to Luxembourg. Hormel’s sin was being gay.

In June of that year, Trent Lott, then Senate Majority Leader, happily pandered to his base by upping the volume of venom considerably, very publicly comparing gays to alcoholics, sex addicts and kleptomaniacs, characterizing gays as sinners and a “problem to be solved.” Read the rest of this entry »

Chronic choices

December 8th, 2010 by Ed

I’m hanging steady these days. No hospital overnights, few “procedures”, no new diseases to compliment the half-dozen or so I’ve already collected. People tell me I look better. Yoga has strengthened my body and, it seems, the remaining bits of my mind. Life is good, then, as good as it has been for a while.

So I’m celebrating, right? Well… yes and no. Its not just downward-facing-dog poses, attentive doctors and luck that’s improved things. I made a choice – one of those choices where, to gain one thing you must sacrifice another. I’m doing it solo because no doctor would ever agree.

I’ve been around a lot of sick people and one of the most stubborn rules of thumb I’ve observed is this: Read the rest of this entry »

A Fake Society for a Fake World

November 4th, 2010 by Ed

From Hollywood to Oprah, seems like is taking a swipe at Mark Zuckerberg and his thrown-together monster, Facebook. I got burned by the two-faced beast too…

Every geek, techie and IT pro I know has exactly the same opinion of Facebook: Don’t. Go. There. Ever. Facebook is a giant con, they all say, a tentacled medusa crafted to steal personal information, parse it into marketable chunks for sale to the highest bidder. Privacy, as we have been informed by Zuckie, is dead.

I adhere – or did – to the no-Facebook ethic. It wasn’t hard: 25 years ago with a single PC and a database program now known only to aging geeks I extracted personal info from tiny, innocuous client lists that made my conscience burn. I know well what can be – is being – done with the terabytes of personal info that everyone is shoveling onto the ‘net.

That’s not the only thing about Facebook that makes me queasy. A virtual social network? Posting life’s little conceits and embarrassments on some public wall? Friending as a verb? Unfriending? How very high school. Ugh. My dislike is not unique: “I hate the very idea of it,” is a critique I’ve heard and read many times.

Read the rest of this entry »

A scathing exit

October 15th, 2010 by Ed

I heard an interview on Fresh Air with Tony Judt, a British and American historian, or, as he preferred to call himself, a teacher of history. Judt’s interview with Terry Gross starts with his battle with ALS, which consumed the last two years of his life. As compelling as that story is, it was his description of his last book, dictated during his medical travails, that riveted me.

Ill Fares the Land is a summing up of the lessons Judt learned from his lifetime of studying and analyzing the 20th century.

Short and to the point, the book is a brutally honest description of our world today: what we’ve we’ve surrendered as a society and who we’ve surrendered to.

Given the hellacious election season now underway in sad and mad America, what Judt says about politics and politicians pierced like a honed dagger.

Below is an excerpt describing our current crop of “leaders” that really caught me.

Ill Fares The Land

By Tony Judt
pg 133-135

The men and women who dominate western politics today are overwhelmingly products or, in the case of Nicolas Sarkozy, byproducts of the ’60s. Bill and Hillary Clinton, Tony Blair and Gordon Brown are all ‘baby boomers’. So are Anders Fogh Rasmussen, the ‘liberal’ prime minister of Denmark; Segolene Royal and Martine Aubry, the bickering challengers for leadership of France’s anemic Socialist Party and Herman Van Rompuy, the worthy but underwhelming new President of the European Union.

Read the rest of this entry »

Off topic: Descent, a poem

September 30th, 2010 by EJB

If you are, have been, or may become a Rod Serling fan, you’ll understand how I came to write this poem a few years ago while staring out the window on a long flight.

Descent

by Ed Brownson

Through acrylic
I expect to see Rod Serling sitting on wing
Legs crossed, flashing that famous half smile
A tray table in front of him fastened to nothing
Holds his ancient Underwood, the sort with
Circular keys in bleacher rows and the “W”
Improbably missing. Lack of a “W” is no
Impediment for Rod: his forefingers push
Letters onto a sheet of paper carefully
Avoiding the bare metal lurking between
The “Q” and the “E”.

Once in a while
He leans back for a frown or forward
Into a thought and I worry he’s conjuring the deep
Or bringing us down on some crepuscular
Island where deception holds court and Rod has
A lock on the rules because – no question here –
He wrote them. Then turbulence, and all of us
Who chose window over aisle press eyeballs
To plastic thinking angels or speed bumps or
Aliens at least but Rod just flashes the rest of his
Smile and shrugs.

Now the Underwood
Transforms into a flight recorder box – how in hell
Do I know what that thing is? – and unflappable
Rod starts tearing it apart. I bang on the window
Loudly objecting: dismantling a recorder while sky
Diving doesn’t seem very wise. Next, no warning
We’re inside a cloud and Rod and the tray table
And the box disappear along with the wing
As if we’d snapped tight those cheap shutters
That cover the windows. Long seconds pass by
Before we break back into blue.

Rod’s gone!
No sign of his seat on the wing, no tray, no
Recorder even the Underwood’s not to be found.
Panicked I crawl over the guy snoring next to me
Sprawl across a couple in the seats beyond the aisle
Hoping he’s only switched wings, but Rod’s not there
And I have to think hard about where else I can
Look ‘cause I really need to ask him how to write
A story with no “W’s” and while I’m at it find out
Why his skinny black necktie never once
Blew out in the wind.

END

 

I’ve published Descent with a Creative Commons license.
You can print the poem but you can’t rewrite it and  you can’t publish it without contacting me.

Creative Commons License

Like, simile, dude!

September 10th, 2010 by EJB

Haven’t linked to anything like this before but this ‘toon has so many levels I couldn’t resist. Click to enlarge.

comic

xkcd.com

Patching clunkers:
The body as a ‘66 Mustang past its day

September 9th, 2010 by Ed

I got another repair job a couple weeks ago, this time on my leaky esophagus – leaky as in blood oozing out where it shouldn’t and going where it’s not supposed to, into my stomach. The problem is called varices if you care, and I’ve had many endoscopies over the last decade and repairs have been made, but there was always one leak, the docs warned me, “We can’t fix. It’s in the wrong spot.”

Wrong spot? Read the rest of this entry »

Why nothing works.
Part 1: Let’s save the park!

August 14th, 2010 by Ed

An outbreak of community activism has turned into a crash seminar in why absolutely nothing gets done in America any more.

I’ve become involved with a group trying to keep a large, “unactivated” chunk of San Francisco’s McLaren Park from being strip-mined into a disc golf course. I have doubts as to how successful the group will be – read on to see why – but the cause is just and true: McLaren Park is an oasis of wildness in a densely urban environment, the last bit of city land untouched by developers, planners, and others who consider unbulldozed real estate “wasted”.

Disc golf, for those not in the know (and I sure wasn’t),  is one of those fake sports made up by bored post-pubescent males. Expensive frisbees, edges honed and hardened like an axehead, are thrown from coffin-sized chunks of concrete called “tees” at chain-link baskets on five foot poles called “holes”. Put 18 tees and holes together and you have a “course” consuming dozens of acres. Add beer and bongs to the discs whizzing by at 50 mph and you can clear a park of trees, picnickers, birds, meadows, hikers and dogs in no time. The city allowed a course in Golden Gate Park a few years ago. Today the area looks like an active Marine Corps training ground.

Park aficionados are very upset with this plan and not just for the obvious reasons. The decision to install the course was taken by the Grand Poo-Bahs of S.F.’s Recreation and Parks Department (affectionately known as “Wreck-Park”) without notifying anybody who actually uses the park – a big no-no here on the Left Coast, especially in this city.

Read the rest of this entry »